Wolfram syndrome is a rare disease that presents itself as juvenile diabetes that results in the degradation of the nerve cells in the eyes, ears and brain and in 60% of the cases, causes death before the patient’s 30th birthday.The Jack and J.T. Snow Scientific Research Foundation began as the Jack and J.T. Snow Fund at Washington University School of Medicine in late 2010. The Fund has now evolved into the Foundation, sharing the same mission, to raise awareness of and funding for research that one day will stop the progression of Wolfram syndrome. The Snow Foundation still supports research being done at the Washington University School of Medicine in St. Louis (WUSM), in addition to research that is being conducted in France, Denmark, Spain, Great Britain and Estonia. The Foundation also provides support for the patients and families that are dealing with Wolfram syndrome. The Snow family and the Foundation have, in a very short time, raised significant funds and awareness about this syndrome, in the hopes of one day providing critical information that will be used to halt the progression of juvenile onset diabetes.
For more information:
www.thesnowfoundation.org
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